Less than a month after 11-month-old Charlie Gard passed away, his parents have announced that they are about to launch a foundation aimed at helping other children with mitochondrial and other rare childhood diseases.
Tag Archives: mitochondria depletion syndrome
Inside Charlie Gard Court Proceedings
Sky News is publishing a minute-by-minute blog on today’s court proceedings involving 11 month-old Charlie Gard, including the dust-up between Charlie’s parents and the judge as well as testimony from a US expert who describes the kind of treatment he is proposing to improve the boy’s life.
Court Reconsiders Charlie Gard Case Today
(Facebook)
NOTE: Important update at end of article.
A British High Court is reconsidering the case of Charlie Gard, the 11 month-old infant who is dying of a rare mitochondrial syndrome, after researchers at the Vatican’s Bambino Gesu hospital provided additional evidence that new therapies could help the child.
Beloved Charlie Gard Taken Off Life Support Today
The 10 month-old baby boy who has been at the center of furious fight for the right of his parents to determine the child’s fate, will have his life support terminated today.
